State Intellectual and Developmental Disability Agencies' Service Trends

DATA NOTE No. 60, 2018

By Agnieszka Zalewska and Jean E. Winsor

Data Source: The National Survey of State Intellectual and Developmental Disabilities Day and Employment Services

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In FY2016, an estimated 638,568 individuals received day or employment supports from state IDD program agencies. This number grew from 455,824 in FY1999. The estimated number of individuals in integrated employment services increased from108,227 in FY1999 to 120,244 in FY2016. Despite the trend to terminate facility-based services in some states, the overall state investment continues to emphasize non-work services, rather than integrated employment services. Figure 1 shows the trends in the percentage of people served in integrated employment and facility-based and non-work settings between FY2008 and FY2016.

Major findings include:

  • Modest growth in the number of individuals in integrated employment since 1988.
  • It is estimated that individuals participating in integrated employment services was 18.8% in FY2016.
  • Growth in supported employment primarily occurred between the mid-1980s and mid-1990s, and there has been a decline in the percentage of people with IDD in integrated employment since 2001.
  • Growth in community-based non-work services has continued for states that report offering this service.
  • State variation exists in participation in integrated employment as well as in other non-integrated employment service categories. (Table 1).


Suggested Citation

Zalewska, A., and Winsor, J.E. (2018). State Intellectual and Developmental Disability Agencies’ Service Trends. DataNote Series, Data Note 60. Boston, MA: University of Massachusetts Boston, Institute for Community Inclusion.