State Intellectual and Developmental Disability Agencies' Service Trends

Data Note 51

By Jean E. Winsor

Source: The National Survey of State Intellectual and Developmental Disabilities Day and Employment Services (Institute for Community Inclusion, State Data Project).

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Since Fiscal Year 1988, the Institute for Community Inclusion has administered the National Survey of State Intellectual and Developmental Disability Agencies’ (IDD Agencies) Day and Employment Services. The work is funded by the Administration on Developmental Disabilities and is designed to describe the nature of day and employment services for individuals with intellectual and developmental disabilities.

In FY2013, an estimated 607,959 individuals received day or employment supports from state IDD program agencies. This number grew from 457,405 in FY1999. The estimated number of individuals in integrated employment services increased from 108,680 in FY1999 to 113,271 in FY2013. State investment continues to emphasize facility-based and non-work services, rather than integrated employment services. Figure 1 shows the trends in the percentage of people served in integrated employment and facility-based and non-work settings between FY2004 and FY2013.

Major findings include:

  • National estimates suggest that there has been modest growth in the number of individuals in integrated employment since 1988.
  • The estimated percentage of individuals participating in integrated employment services was 18.6% in FY2013.
  • Growth in supported employment primarily occurred between the mid-1980s and mid-1990s, and there has been a decline in the number of people with IDD in integrated employment since 2001.
  • Growth in community-based non-work services has continued for states that report offering this service.
  • There is large variation across states in participation in integrated employment (Table 1).

Figure 1. Estimated IDD Agency Service Distribution by Year

Estimated IDD Agency Service Distribution by Year

  2004 2007 2008 2009 2010 2011 2012 2013
Percent Integrated Employment*  20.7% 20.4% 20.6% 19.8% 19.1% 19.2% 18.4% 18.6%
All Facility-based and Non-work Services  79.3% 79.6% 79.4% 80.2% 80.9% 80.8% 81.6% 81.4%

*Percents displayed represent estimates for the number of people served in integrated employment nationally including all 50 states and Washington, DC

Table 1. Participation in Day and Employment Services in FY2013
State Total Served Percent Integrated Employment Percent Community Based Non-work Percent Facility Based Work Percent Facility Based Non-work
AK  1,608 26% 0% 0% 98%
AL  4,893 4% 0% 2% 94%
AR -1 -1 -1 -1 -1
AZ  7,471 21% 0% 12% 67%
CA  79,833 12% 75% 13% 0%
CO  7,706 27% 74% 0% 54%
CT  9,764 49% 51% 4% 0%
DC  1,253 12% -1% 0% 87%
DE  1,923 29% 13% 24% 31%
FL  16,653 14% 0% 0% 0%
GA  19,854 13% 26% 0% 60%
HI  2,180 2% 90% 1% 56%
IA  12,998 17% 0% 25% 58%
ID -1 -1 -1 -1 -1
IL  24,178 6% 0% 1% 93%
IN  13,049 15% 71% 34% 43%
KS  6,200 13% 53% 50% 58%
KY  7,072 18% 96% 0% 13%
LA  5,346 31% 0% 29% 39%
MA  15,523 29% 17% 20% 55%
MD  12,663 40% 0% 0% 60%
ME  3,515 28% -1 -1 -1
MI  17,746 23% 36% 25% 28%
MN  22,306 13% 25% 53% 8%
MO  5,618 12% 6% 0% 89%
MS -1 -1 -1 -1 -1
MT  1,854 12% 0% 0% 88%
NC  13,625 22% 28% 19% 33%
ND -1 -1 -1 -1 -1
NE -1 -1 -1 -1 -1
NH  3,603 38% 65% 0% 0%
NJ  11,910 11% 0% 22% 63%
NM  3,332 33% 75% 0% 50%
NV  2,372 18% 1% 44% 36%
NY  56,873 13% 0% 14% 82%
OH  34,689 21% 0% 54% 41%
OK  4,050 62% 28% 55% 0%
OR  10,919 33% 32% 24% 25%
PA  28,133 18% 44% 33% 33%
RI  3,475 33% 58% 14% 77%
SC  7,425 29% 11% 38% 42%
SD  2,490 18% 31% 67% 31%
TN  7,026 19% 92% 0% 53%
TX  46,043 8% 0% 1% 54%
UT  3,131 23% 81% 0% 0%
VA  14,127 24% 4% 4% 68%
VT  2,905 38% 63% 0% 0%
WA  8,280 86% 12% 8% >1%
WI  15,367 21% 13% 44% 50%
WV  2,134 41% 100% 1% 58%
WY  1,428 18% 0% 9% 72%

Suggested Citation

Winsor, J. E. (2015). State intellectual disability and developmental disabilities agencies’ service trends. DataNote Series, Data Note 51. Boston, MA: University of Massachusetts Boston, Institute for Community Inclusion.

Acknowledgments

This is a publication of StateData.info, funded in part by the Administration on Developmental Disabilities, U.S. Department of Health and Human Services (#90DN0216).